Online Christian Counseling and Opinion

Posts tagged ‘#epilepsy’

The Importance of Sam’s Law

Hopefully, as I prepare to publish this article, “Sam’s Law”, House Bill 684, was being heard in front of the Senate Education Committee (Tuesday, April 30) and will be placed on the agenda for a vote prior to the ending of the current Texas State Legislature.

The reason this law is of vital importance is that it will require all schools to become epilepsy educated and aware. Epileptic seizures (of all kinds) are often misidentified and epilepsy itself is so misunderstood that many people don’t recognize a seizure when they see one. Some seizures such as absence, simple or complex partial seizures are simply unrecognized.

Even when a seizure is recognized, people often don’t know what to do. This is especially true in our schools. Children and teens with epilepsy can experience a seizure and depending on the type of seizure, teachers, coaches, principals, counselors and even some school nurses are unaware of how to proceed.

This is also true of School police officers and security. In fact certain seizures such as grand mal and petite grand mal seizures are all too often perceived by police and security as simply disobedience and a behavioral or drug related problem sending these epilepsy effected students needlessly and incorrectly to the local jail, juvenile detention facility or a behavioral hospital leading to misdemeanor or even felony charges against a sick person needing immediate medical attention and wasting valuable time.

Please remember, Epilepsy kills.

Sam’s law,  (HB 684), introduced by Rep. Travis Clardy, would require that ALL Texas public school personnel — meaning anyone who has contact with a child with epilepsy — will be trained in seizure recognition and seizure first aid. People who interact with children with epilepsy on a daily basis should be trained to care for them if they have a seizure.

Sam’s Law would ensure seizure education and first aid training for employees in Texas public schools who have contact with children. It would require teachers to take an online course effective Dec. 1, 2019. The bill proposes free seizure recognition and seizure response training for teachers and staff at Texas public schools.

The bill is named in honor of Samantha (Sam) Watkins, a Kilgore ISD student who passed away in December 2016 after complications from a seizure just three months after she had been diagnosed with epilepsy.

Again, not to be morbid (but as an epileptic myself) Epilepsy kills and both time and the proper response can be the difference between life and death.

Much of the foot work in getting this bill introduced into the Texas legislature was due to the efforts of former teacher, Shari Dudo who is also an epileptic. After suffering a seizure at the school where she taught, she founded the Purple Warriors of Texas. Samantha (Sam) Watkins’ mother, Barbara Watkins, also a teacher has worked with Shari to get this bill introduced into the Texas State legislature and bring it to its current point in the state senate.

At the same time, there are many others throughout the nation attempting to get similar legislation introduced into their own states.

Still others such as the RGV’s own April Flowers and her daughter Lili are spending time in Washington D.C. meeting with Congressional staff and Senators in an attempt to raise attention to the need for Sam’s law nationwide.

© 2019 Lee W. Outlaw III, PhD

Becoming EpiAware

This is a meme I came across several years back from one of my Epilepsy support groups and felt it time to include with a short article on anti seizure medication side effects.

The meme addresses a subject we don’t often think about; our anti seizure medication and the side effects they bring to our lives. It sometimes causes us to do or say spur of the moment things we don’t intentionally mean to say or do. It’s very similar to or may even be part of an aura or seizure; and yes most anti seizure meds can cause auras and or seizures.

The side effects are not wanted or planned; they “just happen” without warning. We need to familiarize both our self as well as family members and friends with these side effects.

Remember, most epilepsy medications are not only prescribed for epilepsy and seizures but also for behavioral health use in treating such illnesses as Bipolar Disorder and many Schizophrenia disorders.

Unfortunately for the epileptic, the medication can often have the exact opposite effect for which it was intended in treating such behavioral disorders.

As a result it is extremely important to know your medication’s side effects; not just in general but in you specifically; find out everything you can. Becoming familiar with these side effects can help prevent wrongly diagnosed mental health issues as well as social and relationship issues.

It is important that every epileptic as well as friends and family know and understand anti seizure medication side effects; not just in general but specifically for the epileptic in their life.

We should all become “#EpiAware”.

© 2019 Lee W. Outlaw III, PhD

Not even considered

Symptoms often overlooked as epilepsy related

Being involved with literally hundreds of epileptics in epilepsy support groups, I’m amazed at those recently diagnosed as epileptics who had started out with simple illness symptoms that most of us wouldn’t consider as having anything to do with epilepsy; at least on their own.

The problem arises when over time and normal medical treatment by your General Practitioner these symptoms remain or even seem to increase.

Unfortunately, the GP prescribes a few tests which come back normal or maybe he or she gives you a Rx for a med that eliminates the problem but over time actually triggers other symptoms or even a seizure.

The attached drawing is an admittedly somewhat controversial drawing of many of the associated illnesses or symptoms of epilepsy. However, if you experience any of these, especially together, you should inform your doctor or neurologist immediately.

Any one of these illnesses can be signs of an impending seizure or related to an aura.

We all have these symptoms from time to time and as such the reason many consider this as controversial, but my experience has shown most epileptics have had these associated illnesses at one time.

I hope this drawing will help you better understand yourself as an epileptic or the epileptic in your life.

May God keep us all seizure free.

© 2019 Lee W. Outlaw III, PhD