Since many of us participate in various support groups for epilepsy as a means of strength and encouragement we are so excited to find others like ourselves with the same needs and concerns that we don’t give a second thought to the lurking danger of posting and sharing those feelings on line with others in the group.
This past week as I suddenly found my counseling articles on epilepsy being denied posting on Facebook even in a private and closed personal group, I became aware that Facebook has access to all the private conversations posted even in private, closed groups.
It seems that although the general public does not have access to these so called closed groups (which actually aren’t closed at all) Facebook can and does read everything.
The end result is that anything you post about your epilepsy condition or that of a friend or loved one (via Facebook) on line even in a CLOSED group Facebook sees and knows.
Likewise, hackers and trolls can also utilize such information for their own demented purposes.
You should also be aware that Facebook and possibly a few others are not only violating their own privacy policies that each of us are forced to electronically sign and agree with but with regard to anything concerning medical or mental health they also violate the Federal HIPPA guidelines for patient rights and privacy.
As such, I urge each of you to think twice on what and where you post your questions and comments. Consider personal one on one or genuine local support groups. If that isn’t convenient, then select real, genuine web sites such as this one or some of the new social media groups such as GAB.
Don’t say you haven’t been warned.
© 2019 Lee W. Outlaw III, PhD